Why this title?

Murphy's law : if anything can go wrong, it will at the worst possible moment

Since my maiden name is Murphy I have often found this law to be true, that is when I am not looking for God's grace in these moments.

Like many of us, life is hard. We have experienced the death of a loved one, or we are struggling with cancer or one of the many diseases that God has allowed to infiltrate His beautiful creation.

I have a rare incurable disease that leaves me unable to walk, talk and control my motor functions at times. I have what is called Episodic Ataxia type 2. But for me, the grace is found in that my episodes are just that, epidosic, and I do have times of what my friend called the other day "the old Terri."

I was 38 when my symptoms first began. I was very active and loved to be outside with my 3 boys. I loved entertaining and being a involved with any party that was going on. I water skied, played golf loved camping and was always busy.

Now I find myself sitting more than standing so I would like to use this blog to talk about some of my daily struggles and how God uses them in my life and I pray that maybe God can use them in some way to touch your life.

As I sit here this morning unable to walk around the house and do the things that are driving me crazy, like laundry and that messy table I am reminded of the verse that I memorized 6 years ago when my symptoms first began:


2 Corinthians 4:16-18
Therefore we do not lose heart. Though outwardly we are wasting away, yet inwardly we are being renewed day by day. For our light and momentary troubles are achieving for us an eternal glory that far outweighs them all. So we fix our eyes not on what is seen, but on what is unseen, since what is seen is temporary, but what is unseen is eternal.

For as much as I did not understrand what was happening to me, I was trying to keep an eternal perspective in everthing and searching out God's grace. As you read this blog you will find that I have many good days and many bad ones. I even have good hours and bad hours, I cry a lot, I get frustrated but I am determined to find the grace in all of this and somehow give God the glory.

For now I smile when I think of how my husband and friends pushed me around in my wheelchair on the ice last night and how I am excited for my boys first Twin Valley Middle School baseball game this afternooon. There is always joy to be found!

Tomorrow, I see my neurologist at the University of Penn and we will look at where I have been and how much this disease is progressing. I pray that there is something we can do that will make my life and my families' life easier. If not, I pray that
God gives me the grace to keep smiing through my tears