It's back to square one

Well I got a call from my doctor yesterday and it seems that several years ago another doctor had tested me for SCA6 along with Episodic Ataxia and the genetic test came out negative. So as far as figuring what gene is causing this disease, we are back to square one.

Doctors agree that I have some form of Ataxia, but they have not identified a gene that is causing my form of Ataxia. After almost 8 years of this and my episodes getting worse, I am a little frustrated. However, my neurologist reminded me that there is still so little that we know about this disease, so just hang in there.

I am not one to tell God that He is wrong, but I must say that an answer and prognosis would be great. They want to have my father and sister tested to see if they have any discrepancies in their genes.

Yesterday's sunny day is really making up for the rain today! But I will look for God's grace as my day continues :)

Some encouraging words from one of my favorite Casting Crowns songs:

I was sure by now,God, that You would have reached down
and wiped our tears away,
stepped in and saved the day.
But once again, I say amen
and it's still raining
as the thunder rolls
I barely hear You whisper through the rain,
"I'm with you"
and as Your mercy falls
I raise my hands and praise
the God who gives and takes away.

And I'll praise you in this storm
and I will lift my hands
for You are who You are
no matter where I am
and every tear I've cried
You hold in your hand
You never left my side
and though my heart is torn
I will praise You in this storm

Life is a storm, much like the rain today, let me listen for His wisper in the rain!